Thursday, December 30, 2010

more on Em: let me explain a little

In case you wanted a little more info on Emily's background prior to surgery here is a little info . . .

Emily was diagnosed with Grade 2 Kidney Reflux (Vesicoureteral Reflux) after a VCUG in October 2009. Prior to that they did an ultrasound and blood work
after having 6 repeat UTI/Kidney infections. Due to those results is when they ordered up the VCUG which confirmed her condition. Since she was thought to
only have Grade 2 Kideny Refulx they put her on a profolactic (Bactrim) she had taken this for over a year now. This past October 2010 we had another
VCUG to see if Emily had grown out of her Kidney Reflux only to find out that she had Grade 4 Kidney Refulx. Mercy ran more blood work and ordered
another Ultrasound and refered us on to the University of Iowa Hospitals. At that appointment we learned that Emily looked to have been under diagnosed in
2009 and had grade 4 Kidney Reflux all along. She has also had three back to back "break through" UTI/Kidney infections the past two months. And with
that/Because of her age they recommend surgery over the Defulx that they sometimes do as it is less invasive and outpatient. Her surgery was Wednesday
12/29. It is called Bilateral Ureteral Reimplantation. In her case her refulx is only on the LEFT side, but in some cases the Right side can also have refulx and
not show the signs of refulx until after the one side has been fixed. During surgery they were able to see that the right side did show signs of reflux (not as
bad as the left) and they were able to fix both sides while they were in surgery.

Hope this info is helpful. I think one of the main reasons our pediatric doctor caught this early (after 6 infections) is because her daughter suffered from Kidney
Refulx and she had done a lot of research on it. Who knows how long it may have gone on if Dr Miller was not up to date and aware of the symptoms.

Emily is on the older in of being diagnosed with Kidney Refulx most children are infants to 2-4 years old, but it is not uncommon.

Sent from Beryl's iPad

Wednesday, December 29, 2010

my emily


We call her Em or Emmy, but mostly Em.

Today at 2pm she went in to surgery at UofI hospitals for her Kidney Refulx. The surgery can be anywhere from 3.5-4 hours.

So I figure as I am waiting I could "blog" ... I haven't kept up for awhile, with blogging that is. So because of that I am starting with a clean slate.

I can't belive that my little girl is in surgery right now. I can send her to school and not even think about her being away from me. She could go to a friends house for hours and I wouldn't once cry because I missed my little girl. Today however, I completly miss her with ever ounce of my being. I wonder what things she is dreaming about, I pray God gives her some great dreams while she is "sleeping".

We keep getting different stories, depending which doctor/nurse that talks to us tells us. She could be home as early as tomorrow after the cath is out. But it could also be a few extra days too. But mostly we have heard tomorrow which seems amazing!

We played Monopoly Deal (the card game) while we waited. Camden was a nice enough big brother to let her borrow it. Camden just got it for a Christmas present and in the few days since Christmas it is the most played game in our house.

Em choose me to be the one to go in with her while they put her off to "sleep". She is such a trooper, she walked all the way back with no fuss. She did get nervous a few minutes after being in the operating room. As soon as they started to put the "equipment" monitors on her is when she really started to question everything. Before she went to "sleep" she did ask me to pray for her, and we said Amen just as her eyes got to heavy to keep open. They let me hug and kiss her before I left the room. I think that was my hardest moment was letting go of her little hand. Granted I would not have lasted standing on my own two feet in there very long. I would have been past out on the floor the moment I say anything.

Well, I am going to sign off for now. You can check my Facebok page for updates or my Twitter account. Trying not to send out to many text messages.

Thank you for all your prayers. -beryl